Archive | May, 2011

Update – Week 3 @ home

24 May
Hi Family and Friends,
Thank you all for your continued support while I heal and continue to beat the odds.  You are amazing people and I am so grateful to have you in my life.   I am feeling better everyday and I am working with my many therapists on balance and coordination, memory recall and strengthening my weakened body after being sedentary for so long.  My major milestone over the last week was the  improvement of my headache pain.  I am no longer suffering from the consistent migraines and I am off my prescription pain medicine.   Yeah!!!  I now have intermitant minimal head pain that is controllable by Tylenol.  Occasionally, I feel more like a normal person for the first time since April 7th…I am treasuring those moments:)
Although physically I may look more capable, my brain is insisting that I get plenty of naptime.  Rest and no stress are my doctors orders!  If you know me, then you know how hard it is for me to slow down.  It took a freakin brain aneurysm to get me to slow down and I am dedicated to make a change:)  Doctors, nurses and therapists continue to remind me how important it is for me to rest and manage my energy.   Therapists have trained me on energy conservation techniques e.g. The Energy Envelope, Money in the Bank, but my favorite is The Spoon Theory.  My friend Laura, who also is concerned about my ability to manage my exertion, sent me this great story called The Spoon Theory written by Christine Miserandino.   Her description of what is it like to manage MS is exactly what it is like for me right now in healing my brain.  I wanted to share the URL so you can read it and perhaps have a better understanding of what it is like for me to manage my energy and my days.
You have all eased this very challenging time for my family.  We are so grateful for your time and effort to make meals, send cards, gifts, flowers, prayers, and well wishes!
Love,
Dianne Hill
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Update from Dianne

15 May

Happy Sunday all! Well it’s been just over a week that I have been home from the hospital and I am on the road to recovery. It was a bit of a roller coaster but everything is good. I am spending a lot of my in the rehab center at Good Sam (my second home) and they are happy with my progress. My big accomplishment was that I was able to walk my kids to school last week. Yeah!

I am finally feeling much better and would welcome visitors now. This week the best times would be Monday b/w 11 – 2, Wednesday, noon – 2:00, Thursday, 11 – 1:30. Please call me before you come just to make sure I am feeling up to it. I still have good and bad days so just check with me first. Miss you all!

Final Update from Kami

10 May

Hi everyone,

Sorry to be so out of touch with the updates on Dianne. This will be my last official update. You can continue to be in touch with Dianne’s recovery through the blog that has been set up. The link to the blog is https://diannehill.wordpress.com/. For this final update, I thought it was more appropriate to forward an email from Dianne, her husband, and kids so please read the message that follows below my final words.

Dianne is home. She has been home a week now. Dianne’s birthday was last Friday on the 6th and she was so happy to be able to be home to celebrate her life and this birthday with her family. The transition from the rehab hospital to home has gone well. Dianne has been learning what she can do and what she’ll need help with at home. She returns to the hospital to continue her rehab therapy daily which still requires a lot of energy. It is important that she continues to rest throughout her day so she has the energy needed to maximize her time with her physical and occupational therapists. If you would like to visit Dianne at home, she is ready for visitors, especially those of you who have stayed away to respect the wishes of her family. The only request that Dianne has concerning visitors is that you please call prior to visiting and schedule a time to come by that works for Dianne.

Dianne and her family continue to enjoy the wonderful meals that friends are delivering and all the grocery store gift cards have been extremely helpful. The family can not thank you all enough. I have enjoyed getting to know so many of the great people in Dianne’s life throughout this whole process and I’m so blessed to have Dianne as one of my very best friends. She is truly a miracle and I’m blessed to know her as I’m sure all of you feel the same. Again, please read the message below from Dianne and her family (written by Maurice). Thank you to you all!

Kami

—– Message from Maurice below —-

As of Thursday 5/5 – 4 weeks after her brain hemorrhage Dianne is back. She is home, walking, talking making lunches and telling me what to do 🙂 Apart from being a bit slow, a little weak, and with a killer hair do, no one would be able to guess that 4 weeks ago doctors were ready to pronounce her dead. Against staggering odds she has proved them wrong. Doctors, nurses, friends and family have labeled her recovery a miracle. I have to admit after seeing her that Thursday night, what seems like a year and a day ago all at the same time, as much as I hoped and wanted her to come home, I never thought it would happen. I think her getting here tested the strength and courage of everyone but we made it. She has some more work to do in the coming months physically, mentally and emotionally, but I have no doubt that she will continue to impress all of us.

As things return to normal and people return to their busy lives, I find myself missing all the wonderful people, the hallway conversations, the well wishes, the phone calls, the text msgs.

I speak for my entire family when I say thank you to everyone from the bottom of our hearts, for all the love and support, the amount of which is truly amazing and life changing. We would not have been able to get through this without you. Thank you, wishing you all the best – Love Maurice, Dianne, Travis and Emerson.

Update from Maurice

8 May

4 weeks after her brain hemorrhage Dianne is back. She is home, walking, talking, making lunches and telling me what to do 🙂 Apart from being a bit slow, a little weak, and with a killer hair do, no one would be able to guess that 4 weeks ago doctors were ready to pronounce her dead. Against staggering odds she has proved them wrong. Doctors, nurses, friends and family have labeled her recovery a miracle. I have to admit after seeing her that Thursday night, what seems like a year and a day ago all at the same time, as much as I hoped and wanted her to come home, I never thought it would happen. I think her getting here tested the strength and courage of everyone but we made it. She has more work to do in the coming months physically, mentally and emotionally, but I have no doubt that she will continue to impress all of us.

As things return to normal and people return to their busy lives, I find myself missing all the wonderful people, the hallway conversations, the well wishes, the phone calls, the text msgs.

I speak for my entire family when I say thank you to everyone from the bottom of our hearts, for all the love and support, the amount of which is truly amazing and life changing. We would not have been able to get through this without you.

Thank you, wishing you all the best – Love Maurice, Dianne, Travis and Emerson.

Today is Dianne’s birthday!

6 May

When Dianne was transferred out of the ICU and into regular hospital care, she told the doctors “it’s good to have a goal” and her goal was “to be home in time for my birthday”. I am so excited (and not very surprised) that she met her goal! 🙂

Feel free to post a message for Dianne on her extra special birthday today!

Second Update from Dianne

4 May

Hi all! It’s me Dianne. So happy to be alive today! 🙂

I wanted to let you all know that I am now at home from the hospital and on the road to recovery healing at my house. I have many weeks, probably months of rehabilitation but the prognosis is very positive that I will recover 100%. I am in outpatient rehab at Good Sam about 2 – 3 days a week. Today was my first walk around the block and I did very well. I have to have supervision now so my husband and my brother are home with me making sure I am safe. I am still needing a lot of rest, but I will let you know when I am ready to have visitors again.

I have to keep this short but I must again express my thanks and gratitude to all of you. I can’t even describe how I feel but know that I love you all.